Dwarfism Awareness Month {Part 2}

This is post 2 in my dwarfism awareness series! If you missed post 1 you can find it HERE.

Today will be all about Katie.

She is a spunky little girl with lots of energy and a hilarious personality.

When you first meet her she will act shy – very shy – but once you crack open her shell you might have a hard time getting her to calm down.

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She was born into a family of all girls and a dad. Her oldest sister is 16 years older than her, I am 14 years older, and Maddie is 10 years older than her. She has lots of ladies looking out for her, one protective older brother in-law, and a very loving dad.

If you asked her about her height she’d say something quick and to the point…

“God made me little”

“I’m a little person”

“It’s just how I am”

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If you tell her she’s too little to do something her response is likely…

“I can do everything you can do, I just might do it a little differently”

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She can get up off the ground without using her hands and she is the best headstander I have ever known.

She loves gymnastics and is involved in girl scouts (who wants cookies??)

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She loves PE and is better at the pacer test than I ever was.

It took her a little while longer to learn how to ride a bike because it’s hard to find a bike small enough for her shorter legs. She’s a master bike rider now though.

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She has also spent a lot of time learning how to swim. A four – five year old can usually touch the bottom of the shallow end. Being able to touch the bottom of the pool is significant in learning how to swim. Katie is ten now and can brush her toes along the bottom of the pool, but can’t really rest from swimming until she gets to the steps. She takes swim lessons every summer to ensure that she remains a strong swimmer. And gosh she loves to swim.

She is the size of a 4 year old so sometimes people treat her that way. But she is ten and needs to be treated like a ten year old. She doesn’t like to be babied, but she doesn’t say no to a piggy back ride when we are walking really far.

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Her support system and friends love her well and really look out for her, but she’s tough and can pretty much look out for herself.

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Sure, sometimes it’s not fun being littler than everyone else. But she takes it in stride and is always willing to catch up.

Again, if you have any questions about dwarfism, comment below!

Love, The Jaderstons

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Dwarfism Awareness Month {Part 1}

October is Dwarfism Awareness Month!

2013 LPA Dwarfism Awareness Flyer (Final)

This week I am spreading awareness with a three post series about dwarfism – mostly focusing on achondroplasia.

10 years ago a squishy little girl was born. Her name is Katherine Maxine, but she goes by Katie.

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She was diagnosed at two weeks old with Achondroplasia, the most common type of dwarfism.

We’ll start with the facts…

Little People of America (LPA) defines dwarfism as “a medical or genetic condition that usually results in an adult height of 4’10″ or shorter, among both men and women, although in some cases a person with a dwarfing condition may be slightly taller than that.”

As mentioned before, achondroplasia is the most common form of dwarfism, but there are more than 200 different types of dwarfism.

Achondroplasia is a genetic condition that results in disproportionately short arms and legs. There is typically a larger head with a prominent forehead and a low nasal bridge.

Kelsey and M and K

Intelligence is not affected in people with achondroplasia dwarfism.

The average height of a male with achondroplasia is 4’4″ and a female with achondroplasia is 4’1″.

There are some medical complications that come with achondroplasia, but not all achondroplasia cases experience them. For my little sister, she experienced sleep apnea as a baby, has had tubes put in her ears, and recently had her tonsils and adenoids removed – all of which can happen in average height kids too!

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Achondroplasia is a genetic condition. Both of Katie’s parents (my parents) are average height and Katie could someday have an average height child of her own! Just because Katie is little does not mean her future lineage will also be little.

Ok, that’s the nitty gritty about achondroplasia (the abridged version because whoa – there is a lot to know about achondroplasia dwarfism) If you have other questions about dwarfism please ask and we (my mom and I) will try to answer.

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You’re also welcome for these classic family photos!

Tomorrow I am focusing on Katie, her personality and how she feels about having dwarfism. And there are many more photos to come!

Happy Day!

Love, The Jaderstons

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Our New Headboard!

Our New Headboard!

Confession… This has been sitting in my “projects to blog” folder for awhile. We’d been living without a headboard since we got married and now that we have one it feels like we’ve always had one.. So I kept forgetting to tell you about it!

We have a headboard now though!

Mike built it for me! It is one of the many things I love about having a handy husband. I told him what I wanted and 2 ish days later he had it ready for me!

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I used 3 inch foam squares to create the padding. Luckily we already had some on hand from a project that didn’t happen when we lived in Sterling. I used scissors and a serrated knife to cut the foam and adhesive spray worked great on attaching the foam to the plywood.

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After all the foam was on and fit perfectly I moved the headboard inside to add batting and my fabric!
This was long enough ago that we still had brown cabinets… Ooh I’m so happy that we’ve changed those now.

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I used a simple staple gun to attach the batting and fabric – and I’m thankful for our big dining room table that I used as my work surface. The carpet would have been very frustrating to get the fabric pulled tight.

Next up was nailhead! I bought mine at Hobby Lobby. It was the only place that I could find big nails for a decent price. I bought them when they were on sale too – bonus!

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Pliers, a rubber mallet, and something to keep the lines straight was all I needed – well that and reinforcements from my patient husband on the curved parts. He used a really hard wood on the curves and I did not have the patience to nail the nails in slowly. Every time I tried the nails would bend and be useless. So thankful for him.

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Our bedroom is really making major progress from where we started. I really love it – and I love the colors. Now, for paint on the walls and some decorations… Maybe next year.

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Happy Thursday! Are you working on a project today? I attempted some decluttering… I only made it a little ways before I got distracted and gave up. Whoops!

Love, The Jaderstons

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